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SUNSHINE ACTION 耀陽行動

 

先天性心臟病兒童&患者
C
ONGENITAL HEART DISEASE PATIENTS
 救人一命勝造七級浮屠

Poverty 扶貧 Relief

Non-Political, Non-Religious, Non-Frontier

 

Number of patients with surgery completed : 60 
成功完成 60
先天性心臟病兒童&患者手術

In personally meeting the sick children to be sponsored by Sunshine Action, donors will be assured that their love and dedication is making a difference in others’ lives, by allowing them to live with the basic dignity that we all deserve as human beings. e-mail us:

852-6888 4028sunshine@sunshine-action.org

PARTNERS

廣東救援輔助隊

  • Yunnan Youth Development Foundation 雲南省青少年發展基金會

  • General Hospital of Guangzhou Military Command of PLA

    中國廣州軍區總醫院 http://www.gzzyy.com/Index

  • CHINA People's Armed Police Force General Hospital

               中國人民武裝警總隊醫院

  • BCMF Burma Children Medical Fund (Thailand)

At Sunshine Action (Registered NGO: HK-IRD#91/10271) our mission is to “Feed the hungry and warm the abandoned!” Our operation is entirely-volunteer-based and to date, we have worked collaboratively with over 340 charities across the world in donating, food, medicine, toiletries and other daily necessities to more than 180,000 less fortunate people in Hong Kong, China and other developing countries.

Since 2012, we have a special focus on helping underprivileged children who suffer from congenital heart disease in Mainland China. 100% of the funds raised for this program will be used to subsidize the cost of surgery for these children (i.e. 0% will be used for the administration costs of Sunshine Action).

852-6888 4028sunshine@sunshine-action.org

 

 

 

耀陽行動為香港註冊免稅慈善機構 (免稅檔號91/10271),捐款港幣100元或以上可申請退稅收據。

善有善報,福有悠歸!積善之家,必有餘慶!

先天性心臟病兒童&患者
C
ONGENITAL HEART DISEASE PATIENTS
 救人一命勝造七級浮屠

Fact Sheets

Incidence, Morbidity & Mortality

  • Congenital heart defects are every country’s #1 birth defect. Nearly one of every 100 babies is born with a CHD.

  • Congenital heart defects are the #1 cause of birth defect related deaths.

  • Each year over 1,000,000 babies are born worldwide with a congenital heart defect. 100,000 of them will not live to see their first birthday and thousands more die before they reach adulthood.

Lifelong Disease

  • Almost half all children and adults with complex congenital heart disease have neurological and developmental disabilities.

  • For the first time, more than 50% of the CHD survivors are adults.

  • 10% of all CHD cases evaluated in an Adult CHD clinic are first diagnosed in adulthood.

Sunshine Action team with 3 patients of CHD in Mae Sot, Thailand - July 2014

General CHD FACTS

  • More than 50% of all children born with congenital heart defect will require at least one invasive surgery in their lifetime.

  • There are more than 40 different types of congenital heart defects. Little is known about the cause of most of them. There is no known prevention or cure for any of them.

 

據資料顕示,全世界平均有分之七人口患有各種類型先天性心臟病人,而中國在比例上更高達分之八,若以中國十三億人口算,患有此類疾病之人則過千萬,而此龐大數字不能不說不驚人。
 

 

在此龐大而患有先天性心臟病之人口中,除了一小部份家庭富裕有能力為患者從小根治其病源外,其餘的、特別是農村貧困家庭根本無此能力籌募一筆高達數萬元之醫藥、手術費為孩子治病,而此批患疾兒童之壽命短暫可以想像,亦為此而動起我們這群有志於----做得多少就多少----之志同道合籌委們發為患有先天性心臟病兒童籌募一筆善款以根除他們之隱疾。

先天性心臟病(簡稱先心病)是胎兒時期心臟血管發育異常而形成的先天畸形,是小兒最常見的心臟病.先心病的發病率約為出生活產嬰的7-8%,未經治療者約34%可在1個月內死亡,50%在1歲內死亡,生後早期死亡者多為復雜畸形或病情較重者。各類先心病中以室間隔缺損最多,其次是動脈導管未閉、法樂氏四聯症和房間隔缺損。

先天性心臟病主要是由於胎兒時期心臟發育的障礙所引起。其主要原因可分為環境和遺傳因素兩類。環境因素是指孕婦懷孕時接受過量輻射、患德國麻疹感染或糖尿病以及在懷孕時使用某些葯物等,引致胎兒患有先天性心臟病。另外如果染色體異常,例如唐氏綜合症的小朋友,患先天性心臟病的機會也會較高,遺傳因素是指有家族史的家庭,他們生下的嬰兒發生先天性心臟病的機會比較高。不過大部份病例都是找不到原因的。

 

 

Congenital Heart Defect (CHD) is a defect in the structure of the heart and great vessels which is present at birth. Many types of heart defects exist, most of which either obstruct blood flow in the heart or vessels near it, or cause blood to flow through the heart in an abnormal pattern. Other defects, such as long QT syndrome, affect the heart's rhythm. Heart defects are among the most common birth defects and are the leading cause of birth defect-related deaths. Approximately 9 people in 1000 are born with a congenital heart defect. Some complex congenital heart defects require medication or surgery.

 

Most of the time CHD is serious and requires surgery and/or medications. Medications include diuretics, which aid the body in eliminating water, salts, etc... for strengthening the contraction of the heart. This slows the heartbeat and removes some fluid from tissues. Some defects require surgical procedures to restore circulation back to normal and in some cases, multiple surgeries are needed. Interventional cardiology now offers patients minimally invasive alternatives to surgery.

Mu Lar Kway is a 14-year-old-girl who came to SUNSHINE ACTION with a congenital cardiac disease known as Tetralogy of Fallot (TOF). TOF accounts for about 10% of congenital heart diseases and is characterized by a ventricular septal defect, or a hole in the muscle wall that separates the two lower chambers of the heart. This hole allows oxygen-rich blood to mix with oxygen-poor blood, and results in a decreased efficiency of the heart. The blood picks up less oxygen from the lungs, and oxygen-poor blood circulates through the body. Because Mu Law Kyaw's blood supply is deficient in oxygen, her skin, lips and fingernails have a blue tint. Due to her condition, the simplest tasks, including the 20 minute walk to school exhausts her. Her condition has also stunted her growth, giving her the appearance of looking much younger.

Mu Lar Kway lives in Burma with her brother, parents and niece. She attends grade 5 in her local school. She enjoys going to school but often has to miss class because of extreme fatigue. Her parents are paddy farmers earning around USD $200 a month. After education and food costs her family are not able to put any money away for savings.


Kyaw Linn Naing is 15-years-old. He was referred to Sunshine Action with a congenital heart disease known as Rheumatic Heart Disease (RHD). RHD is the most common acquired heart disease in children in many countries of the world, especially in developing countries such as Burma. Kyaw Linn Naing was first diagnosed at 11-years-old and experienced heart palpitations, difficulty breathing and cyanosis. He also could not walk for longer than 10 minutes at a time. Kyaw Linn Naing lives with his parents, siblings and grandmother in Burma. His parents are vegetable growers and say Kway Linn Naing's medical treatment is very expensive in Burma and costs more than they can ever afford.

Under BCMF's care, Kyaw Linn Naing received life saving surgery last March. He has since made a full recovery and is looking forward to returning to school very shortly.  His family are very grateful to BCMF and his doctors who helped him. He said when he is older he would like to be a doctor and give other people the gift of good health.

救人一命勝造七級浮屠

 

港幣捐款銀行戶口 For Donation in HKD :

Payee:           SUNSHINE ACTION LTD. 耀陽行動有限公司

Account No.:  
012-926-1-018415-6

Bank Address:  Head Office 1 Garden Road, Hong Kong

Bank Tel:         (852)-2826-6888

**Donation over HKD 100 is tax-deductible in Hong Kong under IRD-No. 91/10271**捐款HK$100元或以上,可獲香港退稅收據.

Click here for Donation Information

(1) 支票 : 劃線支票抬頭為 「耀陽行動有限公司」,煩請付上捐款者姓名、聯絡電話以及回郵地址,以便我們寄回捐款收據,地址 : 葵興地鐵站 A 出口-葵興地鐵站 A 出口 - 華星街8號- 華達工業中心C181802BCheque : Crossed check with payee 'Sunshine Action Ltd. please attach the donor name, contact telephone and complete address for tax-deductible receipt. Unit 1802B, 18/floor, Block C, Wah Tat Ind. Centre, No. 8 Wah Sing Street, Kwai Chung, N.T. Hong Kong

(2) 銀行轉賬 : 閣下可直接轉入捐款到"耀陽行動"的Bank of China中國銀行戶口,入數後需於入數紙上寫上捐款者姓名、電話及回郵地址,傳真至3016 9853 或電郵至 sunshine@sunshine-action.org
Bank transfer : You are welcomed to transfer donation through our HSBC and Bank of China, together with the donor name, contact and mailing address written on the bank in slip, then fax to us at 3016 9853 or email to sunshine@sunshine-action.org

 

 

Sunshine Action Ltd is only based in Hong Kong & This is the only official Website.

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